On Bioethics

catholic moral standing on the special ethics of life

PARENTS OF DOWN SYNDROME CHILDREN WORRY ABOUT THEIR FUTURE IN PERFECT WORLD

  

With 90% of pregnant women aborting a Down syndrome child after a positive prenatal test, American parents of Down syndrome children are turning into activists to protect their children’s future. According to a special report in the New York Times, a dwindling Down syndrome population — now about 350,000 in the US — could mean less institutional support and reduced funding. Even though many of these parents describe themselves as pro-choice, they oppose eugenics. “For me, it’s just faces disappearing,” says a New Jersey mother. “It isn’t about abortion politics or religion; its a pure ethical question.” A number of people are asking doctors to send them couples who an abortion so that they can meet their children.They have a greater sense of urgency after the American College of Obstetricians and Gynecologists recommended in January that all women, regardless of age, be offered a new screening test to detect Down syndrome early in a pregnancy. Although critics term this a “search and destroy” mission, some doctors see nothing wrong with it. Cute as they may be in childhood, they claim, Down syndrome children may be at risk of early-onset Alzheimer’s disease, thus saddling ageing parents with even more onerous responsibilities. 

There are many couples who do not want to have a baby with Down syndrome,” said Deborah A. Driscoll, of the University of Pennsylvania, an author of the recommendations. “They don’t have the resources, don’t have the emotional stamina, don’t have the family support. We are recommending this testing be offered so that parents have a choice.”

But as the Times points out, doctors often paint too gloomy a picture. “She may be able to count change for the bus,” one doctor told a pregnant Delaware woman. “But what’s going to happen when the bus doesn’t come?” Her Down syndrome daughter, now 5, does not yet take the bus, but she does ride horses. ~ New York Times, May 9   

… AND PRO-CHOICE ADVOCATES WORRY, TOO

Genetic testing is shaking the mindset even of abortion advocates, says the New York Times. Although 70% of Americans would support women who terminate a pregnancy if a child has a serious genetic defect, all but the staunchest supporters of pro-choice policies question whether any defect whatsoever is reason enough. The problem is that the pro-choice stand is colliding with a commitment to tolerance of human difference. And now that tests make it possible to select for late-onset diseases like breast cancer or arthritis, and may some day make it possible to select for intelligence or eye colour — not to mention sex — pro-choice disability advocates are finding hard to draw the line.”It so buys into this consumer perspective on our children,” says Marsha Saxton, of the World Institute on Disability, in Oakland, an abortion-rights supporter.

Some religious conservatives say that they trust God to give them the child that is meant to be,” wrote Ann Althouse, a law lecturer at the University of Wisconsin, on her legal blog. “But isn’t there something equivalent for social liberals? Shouldn’t they have moral standards about what reasons are acceptable for an abortion?” ~ New York Times, May 13   

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